My team is helping federal departments and agencies as they work to ensure: (1) they are using data to benefit all Americans; and (2) they using the data available responsibly.
Ensuring Data Science Benefits All Americans
Good data science and technology must benefit all Americans. As I outlined in my initial memo to the public, my team is focusing on living up to that mandate by:
- Providing vision on how to maximize societal return from federal government data;
- Creating federal data policies that enable shared services and institute forward-leaning practices to continue U.S. leadership in the data age;
- Collaborating with federal agencies to be successful on the previous two points, identify best practices, and ensure long-term sustainability; and
- Recruiting and retaining the best minds in data science for public service.
Providing for Responsible Data Use
The only way to make sure the federal government is using data responsibly is to engage with the public directly to seek input on what are acceptable uses of data.
Spotlight: Precision Medicine Initiative
(Or, How Open Datasets Can Make Our Treatment and Prevention Plans More Personalized and Effective)
One example of how the Administration is working to ensure data science benefits all Americans, while also providing for responsible data use, is the Precision Medicine Initiative (PMI). The mission of PMI is to enable a new era of medicine through research, technology, and policies that empower patients, researchers, and providers to work together toward development of individualized treatments and disease prevention.
To do this, we are collaborating with the public to get your input and support. Everyone who participated in our Twitter chats (#PMINetwork), National Institutes of Health (NIH) workshops, listening sessions, and wrote letters gets a big THANK YOU. Your help has been invaluable as we continue working on this incredible opportunity. For example, we’ve heard clearly that we need to ensure that the participant/patient is central to the project and their data is treated responsibly. With that feedback in mind, we recently announced our privacy and trust principles.
August 8 was an exciting day, as we welcomed our Precision Medicine “Champions of Change” to the White House. Make sure to watch the full video of the event to learn more about the progress being made.
If you’re interested in learning more about the sessions on Precision Medicine hosted by the NIH, visit here. The Precision Medicine Working Group closely reviewed feedback from those sessions and will publish their advice to the NIH Director this fall.
Spotlight: Open Data
(Or, How We Can Use Big Data to Make People’s Lives Better)
Our data team is also continuing efforts to utilize and unleash data to improve lives. Thanks to the President’s Executive Order requiring that agencies make data open and machine readable, by default the power of data is being unleashed for all Americans. Data.gov hosts more than 130,000 datasets from nearly 80 agencies and 37 state, county, and city data catalogs. There are more than 8 million page views annually and we’re just getting started.
Presidential Innovation Fellow Ian Kalin on Innovation at the Department of Commerce
Take the Department of Commerce, which recently announced a big data project with Google, IBM, Microsoft, Amazon, and the Open Cloud Consortium to improve all the products that help people respond to the weather and the environment. The goal of this project is to liberate more than 50 terabytes per day of previously inaccessible information — for free — by combining government expertise with private-sector technological capabilities. Doing so will fuel new business innovation and support the Administration’s Climate Data Initiative.
Presidential Innovation Fellow Mikel Maron On Crowd-Mapping For Disaster Response
Another example of using government data to help make people’s lives better was after the Nepal earthquakes and the incredible grassroots effort by data scientists around the world to use open data to help first responders and aid workers better understand the situation around them. To get a sense of the power of all these efforts, check out the talk I participated in at the International Open Data Conference (and hey, PDFs shouldn’t be considered “open data”!).
Images courtesy of American Red Cross and British Red Cross; Canadian Forces; and Kathmandu Living Labs
Spotlight: Criminal and Social Justice
(Or, How a Police Chief in New Orleans Came to Write His First Line of Code)
Another example of the power of data to improve lives is through criminal and social justice efforts. Criminal justice systems — from small towns to massive cities — collect a lot data on the people and cases that move through them. Virtually every law enforcement action has a record associated with it. Minorities, the poor, and those with mental health concerns have a disproportionate number of interactions with law enforcement. If all of the data from law enforcement were effectively captured, analyzed, and shared, imagine how the effective sharing and analysis of that data could advance proven reforms, increase efficiency, and prevent injustices.
The recommendations from the Taskforce on 21st Century Policing called for the novel use of technology to tackle this social justice opportunity in the immediate term. One of the first projects, announced by the President in Camden, New Jersey, is the Police Data Initiative (PDI), which focuses on generating and implementing new data and technology innovations within key jurisdictions, civil society groups, and federal, state, and local agencies. PDI is centered on two key components: (1) using open data to build transparency and increase community trust, and (2) using data to enhance internal accountability through effective analysis. PDI has mobilized 26 leading jurisdictions across the country, bringing police leaders together with top technologists, researchers, data scientists, and design experts to use data and technology to improve community trust and enable a shift towards data-driven community policing.
Presidential Innovation Fellows Denice Ross and Clarence Wardell on The Police Data Initiative
This incredible effort has been led by two Presidential Innovation Fellows, Denice Ross and Clarence Wardell. To see the power of their efforts, read Denice Ross’s story about working directly with the police and youth in New Orleans and how New Orleans Police Superintendent Michael Harrison came to write his first line of code.
Cities participating in the Police Data Initiative (Graphic by Chris Wong) & Student helps Police Superintendent Harrison write his first line of code (Photo by Tyler Gamble of the New Orleans Police Department)